Dear Teacher, Mentor, or Employer:
My entire life you lot having been telling me how slow I am, that I need to "pick up the pace." Each time one of you came to me saying something like this, wanting to please you and ever wanting to improve personal performance, I have endeavored to observe and take to heart any little tips that will help me speed up my work. Let me tell you something, when a person has Tourette Syndrome, among other things, veering away from what has become my norm is always a challenge, especially when learning something new. More on that later.
I remember the first time someone told me I was too slow and needed to "speed it up." It was art class in first grade. The second time was gym class that same year, because even though my knees were hurting me so badly that I could barely walk, let alone run, the so-called gym teacher didn't believe me and insisted that I complete my final mile long lap around the playgroud while the other children stood in line waiting for me to finish. Talk about humiliating. From there it was Girl Scouts, dance class, high school, and every single employer I've ever had.
You think it's because I'm lazy or don't care very much about my job? Let me tell you that I am probably one of the hardest workers that will come through your doors. I am prepared to go above and beyond my duties. Yes, sometimes it does take me a little longer than your "average" person. Sometimes I ask a lot of questions because I'm a perfectionist and want to be sure I have it right. I am a methodical person who cares more about quality, than quantity and when you ask me to speed up, you are only jeapordizing my efficiency and my ability to produce good, thorough results.
Having Tourette Syndrome makes me a high strung person. You think I'm lackidasical, while inside my nervous system is constantly running on "high" and the only way for me to keep it in check is to apply extreme focus to whatever task is put before me. You don't see the epileptic fashion in which my motor tics present themselves whenever I'm at home and am exhausted, stressed out, and/or just plain trying to relax. You don't hear the rain forest that is my vocal tics when I'm in the comfort of my own home and can finally release them without fear of scorn or rejection. You barely see the tip of the proverbial iceberg. In other words, it takes a lot of energy and focus to hold all that in and function out in the world and I'm doing the very best that I can.
You think I like hearing everyone and their mother tell me that I'm too slow? Walk a day in my shoes, taking the everyday criticism that your average subordinate does and add in a constant reminder of the area that you have seemingly fallen short in your whole life and tell me how how that affects your self-esteem and your job performance. Let me know how long you continue to do a good job and, further more, take some pleasure in what you do. Not long... Pretty soon you began to feel smaller and smaller, because nothing you ever do will be good enough and you will never measure up.
In closing, I want to do a good job. I want to do a great job. I want to accomplish my duties to the best of my ability and be able to go home at the end of the day feeling that I did just that. I'm bound to make a mistake now and then, but I want it to be because of simple human error, not because I was trying too hard to go beyond my capabilities in a failed attempt to keep up with a 'Now Society'.
P.S. Here is a link if you want to know more: Tourette Syndrome
Description
This blog is produced by Brynne Jewell to share her own experiences with Tourette Syndrome and to also provide a place for others with questions or comments to mingle.
Showing posts with label bullying. Show all posts
Showing posts with label bullying. Show all posts
July 26, 2016
June 16, 2013
Happy Father's Day!!!
It's rainy and chilly outside. Unusual weather for this time of year in the Northern Panhandle, but I don't mind. I've mentioned several times how my mum has been a great help to me throughout my years in dealing with Tourettes. I've talked about how she's supported me, guided me, taught me to stand up for myself, etc, but today I want to talk about my dad.
Whatever mysterious gene that Tourette Syndrome comes on came from his side of the family, along with OCD. Several of the oddities that I've experienced over the years, he's gone through himself. Having TS can be very lonely when you're the only known one in the family who has it, so it's kind of cool when we find something else in common. Throughout my college career, as I've mentioned before, I've experienced some prejudices that I didn't know how to or couldn't deal with on my own. My dad has come to class with me when I felt like I couldn't be alone, and he's gone to bat for me when someone wouldn't give me the accomadations I needed or didn't seem to "get" that having Tourettes can be difficult and can sometimes make certain everyday activities hard to deal with such as: ticcing in public, standing or sitting still for long periods of time, being quiet, sensory processing, etc.
My dad, my mum, and various other peoples have been responsible for the on-going process of learning to be comfortable with myself and my tics and being able to stand up for myself. I don't believe in being quiet or sitting on the sidelines while someone gives me a proverbial beating. I don't always know what to say, but, chances are, someone else does. The important thing to remember is each time someone sticks up for me and/or I stick up for myself, and promote Tourette Syndrome awareness, I've gained another notch in my belt of advocation. Being an advocate can be something as simple as telling someone you have Tourettes, because you're showing that you're not ashamed of who you are.
I had one incident at a place of employment when I was a sophomore in college where a supervisor got upset with me for calling home because my tics were so bad that I couldn't be still for a second and I didn't know what to do. This was also during a time when I was less than okay with expressing my tics in public. When I tried to explain that I had obtained permission to call and that I had TS, he refused to listen and told me to go home. Try as I might, I couldn't hold back my tears. My mum who was on the phone this whole time listening to the exchange told my dad what was happening and within fifteen minutes he was up there speaking on my behalf to the man who had committed the transgression. If it hadn't been for my dad that day, I don't know what I would have done.
In closing, I just want to remind everyone that everyone out there who has Tourette Syndrome or knows someone with does is covered under that American Disabilities Act. That means no one is allowed to discriminate against you because of your disability.
Whatever mysterious gene that Tourette Syndrome comes on came from his side of the family, along with OCD. Several of the oddities that I've experienced over the years, he's gone through himself. Having TS can be very lonely when you're the only known one in the family who has it, so it's kind of cool when we find something else in common. Throughout my college career, as I've mentioned before, I've experienced some prejudices that I didn't know how to or couldn't deal with on my own. My dad has come to class with me when I felt like I couldn't be alone, and he's gone to bat for me when someone wouldn't give me the accomadations I needed or didn't seem to "get" that having Tourettes can be difficult and can sometimes make certain everyday activities hard to deal with such as: ticcing in public, standing or sitting still for long periods of time, being quiet, sensory processing, etc.
My dad, my mum, and various other peoples have been responsible for the on-going process of learning to be comfortable with myself and my tics and being able to stand up for myself. I don't believe in being quiet or sitting on the sidelines while someone gives me a proverbial beating. I don't always know what to say, but, chances are, someone else does. The important thing to remember is each time someone sticks up for me and/or I stick up for myself, and promote Tourette Syndrome awareness, I've gained another notch in my belt of advocation. Being an advocate can be something as simple as telling someone you have Tourettes, because you're showing that you're not ashamed of who you are.
I had one incident at a place of employment when I was a sophomore in college where a supervisor got upset with me for calling home because my tics were so bad that I couldn't be still for a second and I didn't know what to do. This was also during a time when I was less than okay with expressing my tics in public. When I tried to explain that I had obtained permission to call and that I had TS, he refused to listen and told me to go home. Try as I might, I couldn't hold back my tears. My mum who was on the phone this whole time listening to the exchange told my dad what was happening and within fifteen minutes he was up there speaking on my behalf to the man who had committed the transgression. If it hadn't been for my dad that day, I don't know what I would have done.
In closing, I just want to remind everyone that everyone out there who has Tourette Syndrome or knows someone with does is covered under that American Disabilities Act. That means no one is allowed to discriminate against you because of your disability.
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